MHE

Howdy, all. Now that I'm in the good graces of Jeanie again (I hope!), I
wanted to mention again that I'm writing an article on PWS aimed at a general
parenting population. I sent out a request last week for help on this.
Thanks to all who have responded so far. If you could please comment on the
following specific issues and add any other comments, stories, suggestions,
I'd very much appreciate it.
Please send back to me privately by Tuesday May 9, and I'll be in touch.
Thanks a bunch!
Linda Thomas

HELLO EVERYONE...
I AM MAKING THIS SPECIAL REQUEST FOR MY BIO MOM'S HUBBY.. THEY HAVE TAKEN
IT INTO THEIR HEART AT AGES OVER 40 TO RAISE 2 MORE SPECIAL NEEDS KIDS AFTER
WHILE ALL OF US KIDS THAT ARE NATURAL TO THEM ARE WELL OVER AGE 20.. HE
WOULD LIKE TO PUT AN INSPIRATIONAL BOOK TO GETHER FOR THOSE NEW PARENTS TO
SPECIAL NEEDS KIDS.. SO ANY STORIES YOU WOULD LIKE TO SHARE.. HE WOULD
APPRIECIATE... PLEASE CONTACT ME DIRECTLY AT MEAG0SMOM@...(THE 0
NEXT TO THE G IS ACCTUALLY THE ZERO KEY IF YOU GET CONFUSED..THEN THE REST
ARE NORMAL O) THANKS SO MUCH FOR THOSE WHO WISH TO SHARE THEIR STORIES.. YOU
CAN BE GRAM AND GRAMPS YOU CAN BE MOM AND DAD AUNT UNCLE COUSINS.. ANY
ONE.. OR JUST AN EXTRA SPECIAL FOSTER PARENT...
THANKS
VICTORIA.. MOM TO MEGO 14 MO.. PWS.. DELETION

Pamela,
We don't know for sure if Christopher is deletion or UPD - we've always
assumed deletion because he was diagnosed using the FISH test and also since
he looks so much like some of the other kids with deletion. Am I right in my
thinking here? We never went to the follow-up visit with the neurologist
because he was so difficult to deal with, self-important and condecending -
he was the cause of most of my stress!
Patrice

In a message dated 5/2/2000 6:52:54 PM Central Daylight Time,
jeanierekow@... writes:
<< you obviously didnt see the picture of me sitting on someone...lol ohh we
wernt just sitting were we velma...LMAO
LMAO.. no that picture didn't go to the list. I'm sure they are not
interested in your picture with my head under your shirt hee hee hee. Totally
trashes my reputation as list owner.
Velma in Louisiana
Mom to Johnna 14, Chelsea 10, KK 6 {PWS} and Zoey 2
~Chinese Proverb: A Child's life is like a piece of paper; Everyone leaves a
mark.~

Velma-
The original place was Ticketmaster, but they have no more tickets for ANY
'NSYNC concert-the tour is sold out. You can use the site below, but it's
one of the ones that has tickets going for 165-250 EACH

linda,
you obviously didnt see the picture of me sitting on someone...lol ohh we
wernt just sitting were we velma...LMAO
proud to be dannys mom,
jeanie

In a message dated 05/01/2000 7:04:32 PM Pacific Daylight Time,
jeanierekow@... writes:
<< i will sit on her at the confrence and make
her beg for forgiveness
ROTF! Are you going to sit on me??!!! Not to perpetuate a war or anything,
but I've had 7 years of boy wrestling.
I am so bent up that we don't have the funds for conference this year. But
maybe next year you can "try" sitting on me. I'll be ready for ya! (Gesh!
Who knew you had a temper?)
Linda
mom to Bram 7, Spenser 4 (PW) and Kennith 2

In a message dated 5/2/2000 4:02:53 PM Central Daylight Time,
sycomommy1@... writes:
<< but I've had 7 years of boy wrestling.
I am so bent up that we don't have the funds for conference this year. But
maybe next year you can "try" sitting on me. I'll be ready for ya! (Gesh!
Who knew you had a temper?)
Darn it! I was ready to start selling tickets. Maybe even set up a mud pit
for this match. We could raise funds for PWS that way too. YOU could raise
funds to attend conference that way LMAO
Velma in Louisiana
Mom to Johnna 14, Chelsea 10, KK 6 {PWS} and Zoey 2
~Chinese Proverb: A Child's life is like a piece of paper; Everyone leaves a
mark.~

In a message dated 5/2/00 4:08:02 PM Pacific Daylight Time,
KKPWS61698@... writes:
<< Zoey got some hot pink high heel shoes and a hot pink feather boa. She
looked
so cute even if she was flushed with the fever. Then I got stupid and said
DARN we wasted Nikki. Wouldn't she have made a lovely green boa. {I know.
Sick, sick, sick}
OMG Velma......LMAO.......you are right!!!!! That is sick, sick, sick!!!
Pamela

In a message dated 5/2/2000 12:25:22 AM Central Daylight Time,
cjbrooks@... writes:
<< Do ya think they will be through by next year?? That sounds like a lotta
crap.
Heck no, they are just trying to shuffle me along and hope that I become
someone elses problem. Ha, fat chance, unless we find someplace else to live
Velma in Louisiana
Mom to Johnna 14, Chelsea 10, KK 6 {PWS} and Zoey 2
~Chinese Proverb: A Child's life is like a piece of paper; Everyone leaves a
mark.~

Debbie what is this website? How can you try to buy online??
Velma in Louisiana
Mom to Johnna 14, Chelsea 10, KK 6 {PWS} and Zoey 2
~Chinese Proverb: A Child's life is like a piece of paper; Everyone leaves a
mark.~